Some Thoughts on Autism

A post about autism featuring some of my thoughts, a petition that I urge you all to sign and share, some highlights from other blogs by autistic people and some of my own photographs.

INTRODUCTION

The origins of this post lie in a quote from a post on includedbygrace which I include here as a combined screenshot and link to the original.

Angela

Since seeing that I have seen several posts on autistic blogs that I wish to share with you, come across a petition that is so important that I feel I must share it and ask my followers to sign and share it as well. Also, the imminent approach of April has prompted me to think once again about…

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

I am more than a little ambivalent about ‘autism awareness month’, and my misgivings are twofold:

  1. To be worth anything awareness must be the most basic of starting points, and needs to lead on towards understanding and ultimately acceptance (see the quote from includedbygrace in the introduction). 
  2. If you consider autism during ‘autism awareness month’ and not for the rest of the year that is simply not good enough. Autistic Spectrum Conditions affect those who have them every day of every month.

This leads on the role of…

AUTISM CHARITIES/ ORGANISATIONS

As someone who is both #actuallyautistic and involved in the running of a local branch of an autism charity I am obviously supportive of some of these organisations. However I am very firm in saying that such charities or organisations must be dedicated to improving the lives of autistic people, and that they should make conscious efforts to include #actuallyautistic people in the running of the organisation. 

There is one very large organisation based across the Atlantic from me which I shall not name (both because I am not a fan of naming and shaming, and also because I do not wish to give them any more publicity) who promote themselves as an autism charity but are in actuality nothing of the kind. They did fairly recently amend their homepage to remove from it references to seeking a cure for autism, but it did not require much scrutiny for it to be obvious that this was not a leopard changing its spots but a leopard trying to con people into believing that it had changed its spots.

I conclude this section by re-emphasing that awareness is not a final goal, it is merely the starting point on the following path:

AWARENESS – UNDERSTANDING – ACCEPTANCE

SOME AUTISM RELATED SHARES

I am now moving to sharing some other stuff I have found, starting with…

A VERY IMPORTANT PETITION – HARRY’S LAW

This petition, calling for an urgently needed change in the guidelines used at hospitals when dealing with autistic children, to be known as Harry’s Law, contains a video as well as a lot of explanatory text. I shall embed the video below the screenshot that I am using as a link. I urge all of you to read the text, watch the video and sign and share the petition. 

Harry's Law

UNASHAMED

Here I am linking to a post on elephantsneverforgetsite, and I am using a screenshot of the end of the post as the link.

elephantsneverforget

THE SILENT WAVE

It is hardly news by now that I am a big fan of thesilentwaveblog, and there have been several excellent posts from that quarter of late. We start with a post titled “Conformity does *not* make life “less difficult” for Asperger’s / autistic people”, which I link to by way of the splendid picture that heads it.

My next share from this splendid blog is a collection of autism related online quizzes. I sampled one of these quizzes, and may check out others in due course. The language used to convey the implications of your result is not always well chosen. I was told at the end of the one I did that I almost certainly “suffer from an Autistic Spectrum Disorder”. No – I have an Autistic Spectrum Condition – what I suffer from is the attitudes of people like whoever deemed that an appropriate form of words. Once again, I use an excellent graphic from the original as the link.

My third link from this source is to an excellent post about being diagnosed with an Autistic Spectrum Condition in adulthood. The title of the post is “Relief and grief ~ the reality of adult Asperger’s / autism discovery”. It must be stated that of the two emotions referred to in the title of this post relief comes first in more ways than one – it is the more significant, the more constructive, and certainly in my own case was very much the dominant one. Once again I am able to link by way of a headline picture:

I complete both the silentwave tribute and the sharing section of this post my once again pointing readers of this blog to the marvellous “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” which you can visit by clicking the link below:

SOME PHOTOGRAPHS

I end this post with a few of my own photographs, which in terms of what is relevant to this post the following in common:

  • All were taken by an autistic person (me), and
  • All feature one of that autistic person’s special interests.
967-a
All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

 

976-a976-b982-a983-a983-b983-c

984-a
As one of my favourite science blogs says “It’s an amazing world of science…let’s go exploring!” You could start by clicking this image to visit them.

985-a

 

Public Transport (and more Spring Photos)

More spring photographs following on my last post, likewise some appropriately themed music, some stuff about public transport, some autism related links and some other links.

INTRODUCTION

This is a follow up to my previous post, but after the photographs I will be sharing a number of links as well. Here is some appropriately themed music once again – Igor Stravinsky’s “Rite of Spring”.

THE PHOTOGRAPHS

Immediatelty I had put up the previous post I set off on another walk. Although I did not manage to capture any more butterflies I did get plenty of splendid pictures.

Corn Exchange
The Corn Exchange

HG

St Nicholas
St Nicholas Chapel
Cats
Cats on a pipe that crosses Bawsey Drain

DrakeMoorhen1sparrowsblackbirdDrake headMoorhen2

sunlight
sunlight on water and exposed mud flats
Waterfall
The upper Purfleet following much needed clean up work.

AN EXAMPLE OF THE DAFTNESS OF BRITISH PUBLIC TRANSPORT

This too has some photographic content. I made passing mention of a daft situation involving public transport in Norfolk in my post “Network Autism”, and now I am following up on it.

bus
A return journey from King’s Lynn to Norwich on this style of bus, going by way of Fakenham, Lenwade, Hellesdon, Taverham and Drayton costs £5.50…
X1
A return journey from King’s Lynn to Norwich on this type of bus, going by way of The Hardwick Industrial Estate, Middleton, Narborough, Swaffham, Dereham and Easton costs £11 – twice as much as in the other style of bus.

Although the routes taken differ, the distance covered and the time taken to cover that distance are similar, and therefore so too is the fuel consumption of the bus. The First Eastern Counties X1 route is available almost the whole day, whereas the Stagecoach X29 route is more restricted timewise, with the first bus leaving King’s Lynn at 6:28AM and the last return bus leaving Norwich at 5:20PM (and the other way around the restriction is greater because the depot is in King’s Lynn. 

This is the sort of nonsensical situation that can arise when public transport is in the hands of greedy profiteers rather than being publicly run and publicly accountable. There is no rational justification for the same journey costing twice as much by one route as by another like this.

LINKS

For today this section divides into two subsections, starting with…

AUTISM RELATED STUFF

I start with a link to a post on Mamautistic, titled “Not an Excuse”. This post is liberally laced with links of its own that I recommend you to follow up. Click on the picture below to read it in full.

My remaining links in this section are to posts on thesilentwaveblog. First up is a post titled “Asperger’s / autism may not be a disability only (but we *do* need to treat it like one)”. Please click on the image below to read this post, which is detailed and well reasoned, in full.

Next comes a post with the title “When an “official” Asperger’s / autism diagnosis is just a formality”. This one is is super-detailed but very well worth the read. Once again, there is an image that I can use as the link.

Finally, to end this subsection, although I reblogged the magnificent ‘put the boot on the other foot’ type post “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” earlier today it is so good that I feel another plug is in order, so if you have not already read it please click on the image below to rectify the omission.

OTHER LINKS

I start this section with a horrifying story from The Canary about how some girls in Britain in 2017 are missing school because they cannot afford sanitary products. Click the image below to read this piece.

Girls are missing school because they can’t afford sanitary products. In Britain. In 2017.

My last two links go together – not only are both to pieces on Skwawkbox, both are to pieces about Tory election fraud:

  1. The first one is titled “#TORYELECTIONFRAUD JUSTICE REQUIRES FULL RECKONING, NOT #MCKINLAY AS SACRIFICIAL LAMB” – as usual I am using an image as the actual link.
    mckinlay
  2. The second piece deals with a ‘tactic’ that the Tories are using as a supposed form of defence, and is titled “TORY ‘NO INTENT’ #ELECTIONFRAUD CONFIDENCE IS A NON-STARTER. HERE’S WHY”. Click the image below to read the piece.
    newsnight intent.jpg

 

 

 

 

The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people

The best ‘role-reversal’ type piece of autistic blogging that I have yet come across – I will probably be linking to the original again, especially as in not very long I have a birthday coming up that relates to the title of this post…

the silent wave

(Beginning note: this is meant to be equal parts satire, seriousness, and helpful.  It’s not meant to sound superior, condescending, or anything else.  As usual, what follows is strictly my own opinion.  Also, the words allistic and neurotypical (often abbreviated “NT”) are, for these purposes, used interchangeably to refer to non-autistic people.  And last but not least, please understand that this is not directed at all allistic people…only the people who fit the description.)


~~DON’T PANIC~~

Far out in the uncharted backwaters of the unfashionable end of western civilization lies a small unregarded segment of the population.  This population has a problem, which was this: we’re largely invisible. Many solutions were suggested for this problem (Autism Awareness, Light-It-Up-Blue campaigns, etc), but most of these were largely concerned with “fixing” the people on the spectrum, which is odd because on the whole it wasn’t the spectrum people that needed fixing. And…

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Network Autism

An important autism related meeting in Dereham plus a few shares and some photographs.

INTRODUCTION

As well as my title piece, which as promised yesterday, is about the meeting in Dereham organised by Autism Anglia and ASD Helping Hands that I attended this morning. Karan and I were a little late arriving as she could not leave before the person who would be looking after her son had arrived and I had arranged a meet up point at The Gatehouse since while I was definitely up for the meeting I was not up for forking out the £11 it would have cost to me travel there and back under my own steam (at some point I will be putting up a post on public transport that will highlight why this particular shortish journey is so extortionate – for the moment suffice to say it has nothing to do with logic, reason, meeting passenger needs or anything else that has any place in the proper running of a public transport system). This meant that although we were able to introduce ourselves we missed most of the other people’s introductions. 

THE MEETING

The meeting had been arranged to discuss amendments to an autism strategy document which as it stood was laughably incomplete. Autism Anglia and ASD Helping Hands were effectively doing the kind of outreach stuff that Norfolk County Council should have been doing but weren’t. The County Council’s own meetings about such matters are invariably in Norwich, generally with a requirement that one arrive by 9:30. Before moving on to NAS West Norfolk’s role in the events of this meeting I will mention two things from the preliminary talk that caused hackles to raise. First, Norfolk County Council’s person responsible for co-ordinating matters relating to autism appears to have his fingers in a suspiciously large number of pies, and extending from this seems to be overly averse to scrutiny (as a West Norfolk resident who has the incinerator debacle seared on his memory I am naturally inclined to be mistrustful where Norfolk County Council are concerned – although we eventually won that one and the thing did not get built). Secondly there is the role of Norfolk Steps, who seem to have a monopoly on training provision for parents and carers and to be very reluctant to see that change – one person at the meeting had tried to use their materials to provide training and was told to desist. Another strike against Norfolk Steps from our point of view is that their training is not autism specific.

The key pages of the inadequate document that we were trying to improve were pages 16-19, and there was little we could do about what was on page 16, so as we seated around three tables each table was assigned a page to look at and make additions to. Ours was page 18:

P18

I have already covered a lot of the problems with Norfolk Steps, but there is one extra point – they have recently had their funding reduced, and no longer offer “steps plus” to parents. 

There were a few additions to point 5, which started our page. Point 6 was the single most inadequately expressed point in the whole sorry document. For this point to be worth the ink and paper it has to contain chapter and verse – the specific Act of Parliament and the specific clauses contained therein that are of most relevance. 

Anne Ebbage of Autism Anglia will be passing all the points raised at this meeting on to the council, and if the final version of this document is not massively changed and enlarged there will be trouble.

This was a very useful and productive meeting, and I hope it will play a role in dragging Norfolk’s approach to autism and autistic people out of the dark ages wherein it seems to have been stuck for some time.

A SEGUE LINK

The first part of this post has been about autism, and so I introduce the remainder of it by way of a link to an interesting piece by The Inked Autist. My views are rather different to those expressed in this post, but I recommend that you read it here.

A BUSY WEEK FOR DPAC

That title is no overstatement – this section contains a link to a post on the DPAC website and two embedded videos. 

The post, which gives this section of this post its title, can be accessed by clicking the DPAC logo below. Then you can find the two videos, which are both about a protest outside Parliament. The first video was created by Let Me Look TV, the second by Steve Topple of The Canary.

DPAC

PHOTOGRAPHS

I had planned to include more stuff in this post, but a malfunction has prevented that – I have just lost a large amount of stuff that was in here and have no way of getting back, so here are the photographs.

blackbird2WLC

magpie
A magpie near the pick up point in Lynn this morning

MNR3MNR2

MNR1
Three shots featuring a stretch of the Mid-Norfolk Railway in Dereham
Ecocity
One of the “Ecocity” towers near Swaffham – even in this picture, and still more so in the further edited version the observation room near the centre of the propeller is clearly visible. The original shot from which this picture and the next were both obtained was taken through the window of a moving car.

Ecocity - Editedblackbird4blackbird3propelleaf

 

Shares and Sharing

A (very brief) case study on inspiration, some autism related stuff and stuff about sharing, and some of my own photographs – read, enjoy and feel free to share so long as you do so in the right kind of way!

INTRODUCTION

I have a number of things to share today (although today’s blogging won’t quite be on the epic scale of Saturday’s), and with one significant exception for this post I am concentrating on autism related stuff.

A CASE STUDY ON INSPIRATION

One of the treats awaiting me in my inbox this morning was a post on estersblog about Greenwich. Seeing her pictures of Greenwich inspired to me to created a post on my London transport themed website about Greenwich. The picture below is one of Ester’s, and links to her post about Greenwich:

img_0308

As well as the picture that I am using as to link to the post I was inspired to create, I have a screenshot from that post below it:

1001-b
This is part of the image gallery I created for lot 1,001 in James and Sons’ April auction.
Greenwich
The screenshot

SHARING AND COMMENTING

I came across an excellent post about sharing and commenting on thesilentwaveblog. Please read this post in full by clicking on thesilentwave graphic below:

A NEW FIND – THE AUTISTIC ACADEMIC

I came across this blog yesterday. The post that caught my attention was titled “Ten Things Autistic Kids Pick Up Faster, Better, and With Less Trauma If They Aren’t Bullied Into Learning Them” and can be read in full by clicking the screenshot below. The PDF of the article to which this piece was responding can still be viewed, although the original article has been taken down (nb – once you have posted something anywhere on the net it is exceedingly hard to remove it, so best to think before you post so you have no need to worry aboiut trying to remove it!).

AA

ANOTHER NEW FIND –
THE UNABASHED AUTIST

As a sample of this blogger I offer you a piece title “This Is Your Solution – To Ruin The Bike?”, which can be accessed by clicking the Unabashed Autist graphic below:

PHOTOGRAPHS

Here are some photographs from yesterday to end this post:

station
We start with some public transport themed pictures (five in total)
displayboards
This display is not as prominent within the station building as it should be.
History
Close ups of each poster.

WWN

Bus Station
From the train station to the bus station (while this is not quite a true transport interchange, the distance is only about 200 metres)
Blackbird in branches
Some of these pictures were taken yesterday morning, the others yesterday afternoon after my mother had dropped me back in King’s Lynn (near the cemetery, which made the best walking route home obvious – note for those new to this site best in this context does not necessarily mean shortest).

flowerscrocusesBirdsSquirrelBlackbirdMoorhen

 

 

 

 

 

Asperger’s / autism vocabulary 201 ~ a proposal toward a 21st-century shift

Excellent stuff from thesilentwaveblog…

the silent wave

Yesterday, I celebrated six months of awareness of my true nature: I am autistic (Asperger’s).

This does not make me an expert (at least, not in the academic sense).  It doesn’t grant me a magical power to speak for anyone else.

In the last six months, I’ve investigated this topic–and indeed this “alternate world” (at least, for me) with abnormal intensity.

But really, all I was doing was searching for terms and ideas that more-eloquently described what I had already been experiencing throughout my entire life.  I had already felt those feelings, thought those thoughts, and struggled with those invisible differences; what I learned during my searching merely helped me identify and articulate them.

During this search, however, I noticed some patterns (ha) that struck me.  The official diagnostic criteria and other conventional authoritative sources of information focused on what they observed through their own perspective lens; specifically, what they…

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