Some Thoughts on Autism

A post about autism featuring some of my thoughts, a petition that I urge you all to sign and share, some highlights from other blogs by autistic people and some of my own photographs.

INTRODUCTION

The origins of this post lie in a quote from a post on includedbygrace which I include here as a combined screenshot and link to the original.

Angela

Since seeing that I have seen several posts on autistic blogs that I wish to share with you, come across a petition that is so important that I feel I must share it and ask my followers to sign and share it as well. Also, the imminent approach of April has prompted me to think once again about…

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

I am more than a little ambivalent about ‘autism awareness month’, and my misgivings are twofold:

  1. To be worth anything awareness must be the most basic of starting points, and needs to lead on towards understanding and ultimately acceptance (see the quote from includedbygrace in the introduction). 
  2. If you consider autism during ‘autism awareness month’ and not for the rest of the year that is simply not good enough. Autistic Spectrum Conditions affect those who have them every day of every month.

This leads on the role of…

AUTISM CHARITIES/ ORGANISATIONS

As someone who is both #actuallyautistic and involved in the running of a local branch of an autism charity I am obviously supportive of some of these organisations. However I am very firm in saying that such charities or organisations must be dedicated to improving the lives of autistic people, and that they should make conscious efforts to include #actuallyautistic people in the running of the organisation. 

There is one very large organisation based across the Atlantic from me which I shall not name (both because I am not a fan of naming and shaming, and also because I do not wish to give them any more publicity) who promote themselves as an autism charity but are in actuality nothing of the kind. They did fairly recently amend their homepage to remove from it references to seeking a cure for autism, but it did not require much scrutiny for it to be obvious that this was not a leopard changing its spots but a leopard trying to con people into believing that it had changed its spots.

I conclude this section by re-emphasing that awareness is not a final goal, it is merely the starting point on the following path:

AWARENESS – UNDERSTANDING – ACCEPTANCE

SOME AUTISM RELATED SHARES

I am now moving to sharing some other stuff I have found, starting with…

A VERY IMPORTANT PETITION – HARRY’S LAW

This petition, calling for an urgently needed change in the guidelines used at hospitals when dealing with autistic children, to be known as Harry’s Law, contains a video as well as a lot of explanatory text. I shall embed the video below the screenshot that I am using as a link. I urge all of you to read the text, watch the video and sign and share the petition. 

Harry's Law

UNASHAMED

Here I am linking to a post on elephantsneverforgetsite, and I am using a screenshot of the end of the post as the link.

elephantsneverforget

THE SILENT WAVE

It is hardly news by now that I am a big fan of thesilentwaveblog, and there have been several excellent posts from that quarter of late. We start with a post titled “Conformity does *not* make life “less difficult” for Asperger’s / autistic people”, which I link to by way of the splendid picture that heads it.

My next share from this splendid blog is a collection of autism related online quizzes. I sampled one of these quizzes, and may check out others in due course. The language used to convey the implications of your result is not always well chosen. I was told at the end of the one I did that I almost certainly “suffer from an Autistic Spectrum Disorder”. No – I have an Autistic Spectrum Condition – what I suffer from is the attitudes of people like whoever deemed that an appropriate form of words. Once again, I use an excellent graphic from the original as the link.

My third link from this source is to an excellent post about being diagnosed with an Autistic Spectrum Condition in adulthood. The title of the post is “Relief and grief ~ the reality of adult Asperger’s / autism discovery”. It must be stated that of the two emotions referred to in the title of this post relief comes first in more ways than one – it is the more significant, the more constructive, and certainly in my own case was very much the dominant one. Once again I am able to link by way of a headline picture:

I complete both the silentwave tribute and the sharing section of this post my once again pointing readers of this blog to the marvellous “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” which you can visit by clicking the link below:

SOME PHOTOGRAPHS

I end this post with a few of my own photographs, which in terms of what is relevant to this post the following in common:

  • All were taken by an autistic person (me), and
  • All feature one of that autistic person’s special interests.
967-a
All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

 

976-a976-b982-a983-a983-b983-c

984-a
As one of my favourite science blogs says “It’s an amazing world of science…let’s go exploring!” You could start by clicking this image to visit them.

985-a

 

Public Transport (and more Spring Photos)

More spring photographs following on my last post, likewise some appropriately themed music, some stuff about public transport, some autism related links and some other links.

INTRODUCTION

This is a follow up to my previous post, but after the photographs I will be sharing a number of links as well. Here is some appropriately themed music once again – Igor Stravinsky’s “Rite of Spring”.

THE PHOTOGRAPHS

Immediatelty I had put up the previous post I set off on another walk. Although I did not manage to capture any more butterflies I did get plenty of splendid pictures.

Corn Exchange
The Corn Exchange

HG

St Nicholas
St Nicholas Chapel
Cats
Cats on a pipe that crosses Bawsey Drain

DrakeMoorhen1sparrowsblackbirdDrake headMoorhen2

sunlight
sunlight on water and exposed mud flats
Waterfall
The upper Purfleet following much needed clean up work.

AN EXAMPLE OF THE DAFTNESS OF BRITISH PUBLIC TRANSPORT

This too has some photographic content. I made passing mention of a daft situation involving public transport in Norfolk in my post “Network Autism”, and now I am following up on it.

bus
A return journey from King’s Lynn to Norwich on this style of bus, going by way of Fakenham, Lenwade, Hellesdon, Taverham and Drayton costs £5.50…
X1
A return journey from King’s Lynn to Norwich on this type of bus, going by way of The Hardwick Industrial Estate, Middleton, Narborough, Swaffham, Dereham and Easton costs £11 – twice as much as in the other style of bus.

Although the routes taken differ, the distance covered and the time taken to cover that distance are similar, and therefore so too is the fuel consumption of the bus. The First Eastern Counties X1 route is available almost the whole day, whereas the Stagecoach X29 route is more restricted timewise, with the first bus leaving King’s Lynn at 6:28AM and the last return bus leaving Norwich at 5:20PM (and the other way around the restriction is greater because the depot is in King’s Lynn. 

This is the sort of nonsensical situation that can arise when public transport is in the hands of greedy profiteers rather than being publicly run and publicly accountable. There is no rational justification for the same journey costing twice as much by one route as by another like this.

LINKS

For today this section divides into two subsections, starting with…

AUTISM RELATED STUFF

I start with a link to a post on Mamautistic, titled “Not an Excuse”. This post is liberally laced with links of its own that I recommend you to follow up. Click on the picture below to read it in full.

My remaining links in this section are to posts on thesilentwaveblog. First up is a post titled “Asperger’s / autism may not be a disability only (but we *do* need to treat it like one)”. Please click on the image below to read this post, which is detailed and well reasoned, in full.

Next comes a post with the title “When an “official” Asperger’s / autism diagnosis is just a formality”. This one is is super-detailed but very well worth the read. Once again, there is an image that I can use as the link.

Finally, to end this subsection, although I reblogged the magnificent ‘put the boot on the other foot’ type post “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” earlier today it is so good that I feel another plug is in order, so if you have not already read it please click on the image below to rectify the omission.

OTHER LINKS

I start this section with a horrifying story from The Canary about how some girls in Britain in 2017 are missing school because they cannot afford sanitary products. Click the image below to read this piece.

Girls are missing school because they can’t afford sanitary products. In Britain. In 2017.

My last two links go together – not only are both to pieces on Skwawkbox, both are to pieces about Tory election fraud:

  1. The first one is titled “#TORYELECTIONFRAUD JUSTICE REQUIRES FULL RECKONING, NOT #MCKINLAY AS SACRIFICIAL LAMB” – as usual I am using an image as the actual link.
    mckinlay
  2. The second piece deals with a ‘tactic’ that the Tories are using as a supposed form of defence, and is titled “TORY ‘NO INTENT’ #ELECTIONFRAUD CONFIDENCE IS A NON-STARTER. HERE’S WHY”. Click the image below to read the piece.
    newsnight intent.jpg